Accessibility to information and communication is
one of the aspects of disability that is a matter of concern. The
challenges posed every day by technological breakthroughs themselves
require raising awareness about the realities and needs of this
population group, which could easily be excluded from these
breakthroughs.
In this so-called Information Age, the population
depends increasingly on access to communications. A huge volume of
activities are already being conducted on the world telecommunication
network, and therefore accessibility for disabled persons and their
potential in computerized societies must be considered and safeguarded
in order to avoid one further manifestation of the so-called digital
divide.
In the Dominican Republic, efforts are being made
to provide disabled citizens with digital opportunities. In this
regard, the initiatives that are under way, as part of the ideals of
social inclusion, are striving to put information and communication
technology breakthroughs to the service of promoting equality,
permitting access to a digital world free of barriers, and
facilitating the development and communication of disabled citizens.
As a result, the implementation and access to technologies permitting
the free and democratic exercise of the right to information,
education and work are necessary to materialize social inclusion,
provide equal opportunities, and ensure the democratic exercise of the
fundamental right of disabled citizens.
Conceptualizing Disability
Various conceptual models have been proposed to
define disability, and they can be expressed by a dialectical contrast
between the medical model and the social model. The medical model
defines disability as a problem of the person directly caused by a
disease, accident or health condition and requiring medical care in
the form of individual treatment aimed at healing or changing the
conduct of the individual. [1] On the basis
of that approach, reforming the health care policy would be the
appropriate response.
The social model views disability as a social
problem and focuses on the complete integration of persons in society.
The disability is not an attribute of the person but rather a complex
set of conditions, many of which are created by the social environment.
Therefore, tackling the problem requires social action, and it is
society’s collective responsibility to make the necessary
environmental changes to ensure the full participation of disabled
persons with equal opportunities in all areas of social life.
The United Nations Standard Rules on the
Equalization of Opportunities for Persons with Disabilities sets forth
the principle that all citizens have equal dignity and, as a result,
are the holders of the same rights, and therefore it is the
responsibility of the State and society to guarantee that resources be
shared equitably. These rules are also based on the concept of
disabilities fostered by the environment, which implies that a
disability may be created by the interaction of disabled persons with
their environment. The causes may be the deficiencies stemming from
the physical environment or the gap between the service offered by
society and the real needs of disabled persons. [2]
In all societies of the world, there are still
obstacles preventing disabled persons from exercising their rights and
liberties and hindering them from participating fully in the
activities of their respective societies, and it is the State’s
responsibility to adopt the measures that are needed to dismantle
these obstacles.
The approach has evolved from view of disabled
persons as “the problem” toward one that recognizes that disabled
persons also have skills and, as a result, have the same rights to
participate fully in society, with equal opportunities. The
achievement of equal opportunities is viewed as the process whereby
society’s diverse systems, the physical environment, services,
activities, information and documentation are made available to all,
especially disabled persons.
According to data from WHO, about 600 million
persons, that is, 7-10% of the world’s population, have disabilities,
and 80% of these persons live in developing countries. In the
Dominican Republic, according to the results of the 2002 National
Population Census, it is estimated that 5% of the population has some
kind of disability, and of these, 56,000 (14%) are children and
adolescents from 5 to 19 years of age. [3]
Of these, 14% have a visual impairment, 11% a hearing impairment, 24%
a physical-motor disability, 11% a mental handicap, and 39.5% other
disabilities.
Legal and standard-setting framework for access
to information by disabled persons: Act 42-2000
In the nineties, Act 21-91 was enacted,
establishing the National Council for the Prevention, Rehabilitation,
and Education of Disabled Persons (Consejo Nacional para la
Prevención, Rehabilitación y Educación de las Personas con
Minusvalías—CONAPREM). Because it was not a comprehensive law, after
extended reviews and debates with all sectors (government,
institutions for the disabled, and services for the sector of the
disabled), a new bill was drafted, one with a broader and more modern
vision. It was on that basis that Act 42-2000 establishing the
National Disabilities Council was enacted.
The National Disabilities Council (Consejo Nacional
de Discapacidad—CONADIS), which is the leading institution in charge
of drawing up policies to protect the rights of disabled persons and
improve their quality of life, has among its objectives the task of
facilitating the access of disabled persons to information and
communication, namely:
- To promote and disseminate the concept of a
country without barriers in terms of communication and information.
- To raise the awareness of the general public and
the media, whether radio, press, television or telecommunications, to
facilitate access of disabled persons to communication and information.
- To promote the concept of universal design in
expanding and implementing information and communication technologies
that permit disabled persons to gain access to them.
Institutional Initiatives
To progressively guarantee accessibility to
information for all persons, institutions from different sectors are
now experimenting with technological breakthroughs that facilitate
communication. Among these institutions, there is the Dominican
Foundation for the Blind Fundación Dominicana de Ciegos—FUDCI) which
has a Braille press to print the basic education textbooks issued by
the State Secretariat for Education. Likewise, literary works and
legislative texts that are important for disabled persons, such as Act
87-01, have been translated. The FUDCI is also developing an
initiative called “Libro Hablado” (Spoken Book) aimed at recording
various types of educational and general publications. The institution
also has a computer laboratory with computer adapted to visually
impaired persons, using the Jaws system, for training visually
impaired persons.
The Institute for Help to the Deaf (Instituto de
Ayuda al Sordo) has programmable analog and digital earphones, with an
FM system and personal amplifiers, which make it possible to block out
background noise and echoes, as well as keep up the amplification
level needed to make it easier for every person to hear, regardless of
the distance of the sound source. This institution is also carrying
out the Technological Literacy Project (Alfabetización
Tecnológica—ALFA-TEC) geared to extend the appropriate use of
information technologies to a larger number of deaf users from the
National District and the province of Santo Domingo.
Other institutions, such as the National
Organization for the Blind (Organización Nacional de Ciegos) and the
Olga Estrella National Center for Educational Resources for Visual
Impairments (Centro Nacional de Recursos Educativos para la
Discapacidad Visual Olga Estrella) have technologies that are
specifically adapted to different types of visual impairments.
Likewise, through nongovernmental institutions
working with persons with hearing impairments, a Project for the
Socialization of Communication is being developed, aimed at
contributing to the establishment of a more socially balanced society
and with better opportunities to enhance the productivity, efficiency,
and development of disabled persons and their environment.
Finally, as a result of the initiatives of the
National Commission for the Information and Knowledge Society
(Comisión Nacional para la Sociedad de la Información y el
Conocimiento—CNSIC), which is an entity that is fighting to ensure
social inclusion, initiatives are being developed for the exchange of
technology to help disabled persons, including, albeit not confined to,
the optical mouse for persons with physical and motor disabilities and
software for sign language interpreting that converts sign language
into written and voice texts with the help of a computer, thus making
ICTs available to persons with hearing impairments and speech
difficulties.
Rosa Peña Paula
Executive Director
National Disabilities Council (Consejo Nacional de Discapacidad—CONADIS)
NOTES:
[1]: World Health
Organization. International Classification of Functioning, Disability,
and Health, 2001.
[2]: United Nations
Standard Rules on the Equalization of Opportunities for Persons with
Disabilities.
[3]: Data provided by the
National Statistics Office (Oficina Nacional de Estadísticas—ONE),
drawn from the database of the 2002 National Census.
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